I was diagnosed with Multiple Sclerosis over 30 years ago.  I was frightened because I didn’t really know what that meant or what would happen to me. A friend of my parents had MS, and I could remember overhearing someone say when I was very young that it really would be better if he just died.  I didn’t know if I was going to die, and I didn’t know what would happen to me if I did.  I had gone to church all my life and knew about heaven, but I didn’t really know what I had to do to go there.  When I was in college some friends invited me to a prayer meeting, either thinking that I was already a Christian or (more likely) knowing that I wasn’t but needed to become one.  I saw things in their lives that I wanted in mine and in 1981 I gave my heart to Jesus.

I am now disabled and spend at least twelve hours every day sitting in my wheelchair.  My physical condition continues to deteriorate, and I need help with all my daily care including bathing, dressing, and usually eating.  My physical body doesn’t work very well any more, but physical healing is not something I think about very often.

Of course I believe God can heal me if that is His will.  Nothing is too hard for God, and if He chooses to heal my physical body He can do so in an instant of time.  But physical healing is not the greatest desire of my heart, nor is it usually the focus of my prayers.  My greatest desire is that God will use me – however and wherever He will.

I’ve been so privileged to see some of the ways God has used me, many of which simply would not have happened if I was not disabled.  When I started college I wanted to be a music teacher.  I became disabled just a few years later and gradually found that music therapy was really the path I needed and wanted to follow.  My career as a music therapist gave me opportunities to share the love of Jesus with more people than I can even remember.  My involvement with Special Touch in a few different capacities has also given me many such things as opportunities and has helped me grow as a Christian.  God has shown me that He truly can use “the weak things of this world.”

Since I stopped working in July of 2007 I’ve been searching for new ways that God might use me.  I am volunteering at the facility where I worked and praying that God will lead me in other directions as well.

I have already received the greatest (and only eternal) healing I will ever have on this earth.  God saved me and healed my soul over 25 years ago and has given me the sure hope of eternal life with Him.  Physical healing, which might make my life easier for a time, can’t begin to compare with the promise I already have.  I am so blessed.

Nancy Vyvyan

Larry Sauter joins Dick Gruber and Jason Rhode on a recent episode of the Children’s Ministry Talk podcast to discuss the topic, "Ministry to Children with Disabilities." | email Larry Sauter | Ministry to Children with Disabilities Course | Jim Pierson’s book "Exceptional Teaching" | Special Touch Ministry

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As a parent or guardian of a child with a disability many times questions regarding availability of supports and resources accessible is of great concern. The following is designed in hopes that parents or guardians of a child with a disability may become empowered to become more knowledgeable advocates, utilizing practical skills rooted in a deep abiding faith in Jesus Christ.

Trusting in your own instincts and observations of your child is essential. You are the best advocate that your child will ever have. It is important to maintain a record of your observations in order to relay accurate information to those supporting your child and your child’s family. Additionally keep a log of the information provided to you by health care and service providers as this can help you to recall information and can support you in recognizing things that you may not fully understand in order that you may later ask questions if needed.

Ask for additional opinions, information, and advice when needed; after all, this is your child. It is essential that as a parent or guardian you have all of the information that you need in order to make the most informed decision. Additionally, if you are not satisfied with the health care or service providers assisting you, it is your right to make necessary adjustments. As someone within the field, it is far better to know sooner than later if a family has additional concerns or needs that are going unmet.

Supporting a child with a disability presents unique challenges. For this reason it is imperative to remain connected. The stress associated in raising any child can be difficult, however, having the opportunity to link with other parents, guardians, or adults with a similar disability can assist in not only helping you feel less isolated and encouraged, but may offer ideas and additional resources that professionals may not even be aware of. Who better than the network of self-advocates, parents, and guardians to provide mentorship, support, and a forum for the discussion of ideas and concerns? You may potentially become a mentor as well. When facing challenges sometimes it is in the giving back that so much can be received!

So the real question becomes, where can I turn for help? There are supports that can be received within each state through the Department of Health and Human Services, Department of Mental Health, First Steps programs, and other private agencies contracted with by various state agencies. Through these programs services such as respite care, personal care attendant, offsite day rehabilitation, counseling, even supports such as sibling workshops may be received. Through these agencies issues such as finding appropriate supports as well as funding supports can and will be addressed. Additionally it is important to recognize the role of the schools. Under federal guidelines schools are mandated to provide specific educational supports and inclusion through development of what is called an Individualized Educational Plan (IEP) or a 504 Plan depending upon the nature of the disability.

Remember that God will never give you more than you can handle. God will provide you the strength that you need to get through the difficult situations and will bring you joy and blessings in your child. Be sure to take the time to nurture and restore yourself spiritually, physically, and emotionally. Seek support in not only your biological family and in friends, but in the family of God. Know that God will provide quality people in your life who will care for you and your family.

Submitted by Heidi E. Johnson M.S.

Bob Olla is one saved by grace, husband of a beautiful wife, (Michelle), father of 8 children, grandfather to 10 grandchildren.

Most recently Bob, served as an Associate Pastor in a local church in Wisconsin. He also has been traveling across the Nation facilitating and presenting weekend marriage seminars, ministering in churches and serving as special events speaker. The positive effect of His ministry to Marriages, Families and Individuals has been enormous. He has a unique ability to connect with an audience and Individuals on a comfortable, humorous, yet very inspirational level, which makes him a very effective communicator.

As a Minister, Bob has a deep passion for Jesus. This passion coupled with a strong desire to connect people to the living God, and help them find and fulfill their purpose in God’s Kingdom, is what drives Him.

He has served Special Touch in the past as a Recreation coordinator at several Summer Get Aways, helped develop the 1^st Chapter manual, assisted in scheduling Charlie and Debbie Chivers in Services, presented Special Touch to Churches/ organizations and assisted in Staff training.

Bob has also served as the State of Wisconsin Special Olympics Program Director, Supervisor at Oconomowoc Development Training Center and Transition Specialist at Rawhide Boys Ranch.

Bob States: “I look forward to assisting in the development of a vibrant Chapter program, where needs are meet, discipleship happens and God is glorified. I pray the Chapters will be the heart and soul of Special Touch. and become places of ministry, where the life issues and spiritual needs of individuals and families facing the challenges of disability can be cared for on a ongoing basis.”